In light of the UK government’s advice regarding the Covid-19 outbreak, announced on the evening of 16th March, the Findacure office has now closed and the team are all working from home.
With the recent developments regarding Covid-19 (Coronavirus), we have been considering Findacure’s response to the outbreak.
The winners of the 2019 Student Voice Prize have now been published in celebration of Rare Disease Day 2020. You can find links to all of the pieces here.
Announcing the release of a new learning guide on our online portal. The ‘Developing medical guidelines’ guide focuses on assessing your patient groups suitability for medical guidelines and walks through the different steps of developing medical guidelines alongside NICE guidance. Check it out if you are interested in understanding what medical guidelines do, how they can benefit your patient population and how you can create them.
Are you looking to set up or grow an advocacy group for a rare disease? Or are you looking to share your professional experience and skills to benefit others?
Well then, we have some great news for you! We are now recruiting mentees and mentors for the fifth round of our patient group mentoring programme, due to kick off in March 2020.