RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.
Findacure is delighted to announce its first online workshop, which will provide support and guidance to rare disease patient groups looking to enhance their skills in fundraising. Taking place in interactive 90-minute sessions across three days…
Following our workshop in January, the latest guide on our e-learning portal centres on ‘leading a rare patient group.’ The guide covers the skills needed for good leadership and how these apply to patient organisation leadership.
Our webinar, taking place at 3 pm on Wednesday 22nd April, will help rare disease patient groups to establish efficient trustee boards that set their organisation up for success.
At this time of international crisis, a large number of companies and researchers are turning to drug repurposing as a potential solution – but what is repurposing and why is it such an attractive route for drug development at this time?