Join us on Wednesday, 26th August at 10:30am as we discuss your experience with registries and registry development. This is your chance to connect with other patient group leaders and advocates in the rare disease community!
Our latest guide helps you to re-evaluate your board so that you can take the steps needed to make it better, more diverse and well managed. View guide!
Join our next RareChat, ‘Life post-lockdown: unlocking the rare disease community’, on Friday, 31st July from 13:30 – 15:00 to discuss what a post-lockdown world looks like for you as a patient group.
Join us on Wednesday, 29 July, from 15:00 to 16:30, as we collaborate with Aparito and Pulse Infoframe to bring you our Building your patient group data to drive research webinar!
Big things are happening at Findacure this week, as we just welcomed our new Marketing & Engagement Manager, Blayne!