Join us on Wednesday, 10th March, to discuss getting your community to give back! Come share how you can ensure and encourage participation, engagement and retention amongst your rare disease patient group. Register now!
Complete our 10-15 minute Patient Group Training Survey for your chance to WIN £50, £30 or £20! Claim your prize as a voucher or donate the money to a charity of your choice. It’s a win, win! Take our survey now.
Our next RareChat is here! Join us on Wednesday, 17th February, to discuss raising awareness with the general public. Come hear how your fellow patient group leaders are working to get the general public to care about rare. Register now!
After three months and many impressive submissions and patient group pairings, we finally have our four 2020 Student Voice Prize winners! Please say hello and congratulations to our 2020 overall winner and three 2020 runner-ups!
Join us on Wednesday, 27th January, from 2pm – 3:30pm to discuss inclusion and engagement within your community. Claim your free ticket now to share your struggles and insights with your fellow patient group leaders and come away with new ideas on how to make your group more inclusive!