The Prime Minister has named Dr Nick Sireau and Dr Anthony Hall, the founders of Findacure, Points of Light awardees for driving awareness, research and treatment into rare diseases! Daniel Zeichner MP for Cambridge presented the Points of Light Award to Dr Sireau and Dr Hall on Friday, 8 October, at the Findacure office on 66 Devonshire Road.
We are delighted to introduce you all to our new Patient Group Engagement Committee!
Our newly inducted committee members will be bringing their insights, expertise and lived experiences to the board to help us ensure we meet the ever-growing needs of our patient group community.
It’s that time of year again!
Mediaplanet and Health Awareness’ Rare Diseases Campaign is back and our CEO, Dr. Rick Thompson, is featured amongst it for the third year in a row. Learn what Rick discussed in his article now!
Recruiting a Rare Board is a free programme designed by Findacure and Getting on Board – a charity specialising in trustee recruitment. It aims to help you recruit new board members in a professional manner, ideally leaving you with a group of interesting, skilled, and diverse people applying to help you deliver your patient group’s mission. Applications open now, but hurry – the deadline is 19th September!
You may have seen the Cows about Cambridge and walked their moo-vellous art trail, but what you may not have known is that our Projects Coordinator, Philippa Norman, entered a competition to win one of their mini moos and WON! Learn more now.