The 2020 Student Voice Prize is now OPEN! We’ve launched a new website, branding and essay questions. Learn more about The Student Voice Prize and check out this year’s essay questions. You have until 16th November at 9:00 am GMT to submit your essay!
Our next RareChat on Wednesday 7th October will be discussing your own experiences with managing your network.
Join us, industry, pharma, medical professionals, researchers and fellow patient groups in celebration of innovative rare disease projects across the UK for the first-ever Virtual Rare Disease Showcase on 17th – 19th November 2020!
Join us on Wednesday, 16th September, at 10:30 am for our next RareChat: Engaging young people! Engaging with a younger audience may seem challenging, but we’re here to tell you that it can lead to valuable new opportunities for your patient group.
In support of Youth Mental Health Awareness Day (7th September), we’re launching our #RareMinds: Youth Campaign to highlight the voices, experiences and challenges faced by teens and young adults in the rare disease community. Learn how you can get involved!