Our CEO, Dr. Rick Thompson, welcomes a new baby girl!
Our CEO, Dr. Richard Thompson, has just welcomed a new baby girl! We’d like to introduce you all to little miss Sylvie!
The new UK Rare Disease Framework is here!
If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you. Learn the new UK Rare Disease Framework’s four key priorities and five underpinning themes now!
Our first webinar of 2021 is on natural history studies for rare diseases with Healx!
Findacure has partnered with AI-company Healx, to bring you an informative webinar on natural history studies in rare diseases. Join us on 20th January at 3:00pm GMT to learn how to overcome challenges when designing meaningful natural history studies and more!
Next Online workshop| Representing your community: engaging with ethnic minority communities
Findacure is delighted to announce its next online workshop, which will guide patient groups through improving engagement with ethnic minority groups to better represent and serve their respective rare disease communities.
We are growing our team!
Findacure is recruiting a Projects Administrator to help us deliver our expanding programme of events and projects. Apply by the 15th December for your chance to join our team!