The winners of the 2019 Student Voice Prize have now been published in celebration of Rare Disease Day 2020. You can find links to all of the pieces here.
Announcing the release of a new learning guide on our online portal. The ‘Developing medical guidelines’ guide focuses on assessing your patient groups suitability for medical guidelines and walks through the different steps of developing medical guidelines alongside NICE guidance. Check it out if you are interested in understanding what medical guidelines do, how they can benefit your patient population and how you can create them.
Are you looking to set up or grow an advocacy group for a rare disease? Or are you looking to share your professional experience and skills to benefit others?
Well then, we have some great news for you! We are now recruiting mentees and mentors for the fifth round of our patient group mentoring programme, due to kick off in March 2020.
We are delighted to announce the launch of our new website for Drug Repurposing for Rare Diseases 2020!
Our brand new website is an all-in-one source of information, news and updates on our staple Rare Disease Day event. Featuring speaker bios, an evolving event programme, and profiles on our event supporters, our new minisite is a fantastic resource – whether you are a regular attendee or planning your first conference experience.
Today are very pleased to announce the winners of the latest instalment of Findacure and Medics4RareDiseases annual essay competition – The Student Voice Prize. For six weeks beginning in October medical students from across the world submitted their answers to one of our three questions about the rare disease experience.