1 in 17 is an exciting new project, launched by Findacure’s go-to photographer Barbara Asboth, which focuses on the individuals behind rare disease statistics. The goal is to raise awareness of the paradox of how common rare diseases actually are, by creating a candid, honest photographic essay about each person. The project will look at how individuals spend their days, the challenges they invariably have, but also who they are as people – looking beyond their condition.

The project will run throughout 2018, with plans to publish each participant’s story and photos on a dedicated website, 1in17.uk, and make them easily accessible and shareable by their representative patient groups and charities, as well as the general public. Photos will also be freely available for use to any related organisation who asks for them for their own website or social media in connection with the project. Eventually, all stories will be published in an e-book.

The project is now underway, with a view to conduct initial meetings and photographs in early April. If you’re interested in taking part, or would like more information, please contact [email protected] and Barbara will be in touch.