Join Findacure on Jeans for Genes Day

Join Findacure on Jeans for Genes Day

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Half a million children in the UK are affected by a life-altering genetic disorder. Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take...
Saying goodbye to our Executive Director, Flóra Raffai

Saying goodbye to our Executive Director, Flóra Raffai

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It is with a mix of sadness and gratitude that we announce the departure of our Executive Director, Flóra Raffai, from the Findacure team. Flóra started working as Project Manager in 2013, at which point she was the only Findacure team member. In late-2015, she took...
The Cardiff Rare Disease Showcase

The Cardiff Rare Disease Showcase

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Findacure is pleased to announce The Cardiff Rare Disease Showcase! Given the barriers that rare disease patients often face in getting the support and treatments they need, we believe that collaboration between all stakeholders is the only way the rare disease...
The Student Voice: Winners published!

The Student Voice: Winners published!

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To mark Rare Disease Day 2017 our collaborators at Orphanet Journal of Rare Diseases published our three winning entries to our student essay competition, ‘The Student Voice’. We also presented all three of our winners with their certificates at our scientific...