We have been very busy over the past few weeks thinking about the best ways to support the rare disease patient community at this time of lock down. One of the first things we did was run a focus group to talk to rare disease leaders about the impact covid-19 had had on them and their patient groups. It turns out they liked the chance to chat, and asked us to have more sessions like it. With that in mind, we are thrilled to introduce a new virtual series – RareChat!
RareChat is a chance to chat informally to other patient group leaders and advocates in the rare disease community. Each session will have a theme suggested by our community and a Findacure team member to chair the discussion.
The aim is simple – to provide you with a chance to stay connected with the wider rare disease community and share experiences and ideas during lockdown.
The first edition of RareChat will focus on Mental Health and will be held at 15:00 on 30th April.
Spaces are limited to ensure everyone can contribute, so sign up now!