Data continues to be at the forefront of science and medical research, especially when it comes to drug development and its impact on patient health. In the rare disease world, research and patients tend to be scarce, so it means that patient groups have a unique role to play.
Patient groups fill an important niche because they can fully understand the patient experience of the disease and coordinate the appropriate research that’s needed to address it.
What You’ll Learn
- Ways patient groups can grow their personal rare disease datasets to drive research and become a crucial partner to industry
- Discover and explore new technologies and opportunities available to patient community datasets that are at the forefront of cutting-edge research