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Mary Rose Roberts

August 2019

Summer Skydive

31st August
North London Skydiving Centre, Block Fen Drove, Wimblington, Chatteris
March, Cambridgeshire PE15 0FB
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[image description: photograph of skydivers raising money for Findacure]

Take part in our summer skydiving spectacular! Calling all daredevils and thrill seekers: Now is your chance to sign up for the adrenaline rush of a lifetime! Following the success of our 2018 Skydive, Findacure will once again see our bravest supporters launch themselves from a plane at over 13,000 feet for a worthy cause. Sound interesting? Skydiving may just be the feat for you! We will be on hand to make sure you are fully prepared for your dive.…

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September 2019

Workshop: Building a rare disease patient registry

17th September at 10:30 am - 4:30 pm
White & Case, 5 Old Broad Street
London, EC2N 1DW United Kingdom
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[Image description: a man in a seated audience holds a microphone and is speaking to an unseen person]

Findacure is delighted to announce its next training workshop, which will guide patient groups through developing a strategic approach to building a registry that is right for their organisation. 

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October 2019

The Manchester Rare Disease Showcase

8th October at 10:00 am - 5:00 pm
Bridgewater Hall, Lower Mosley Street
Manchester, M2 3WS United Kingdom
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[image description: a woman stands laughing amongst a crowd of people]

Our Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. Join Findacure for The Manchester Rare Disease Showcase – a day long conference celebrating rare disease developments in Manchester and North West England.

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