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Mary Rose Roberts

November 2018

Transforming rare science into treatments workshop

19th November at 10:30 am - 5:00 pm
RCPCH, Royal College of Paediatrics and Child Health, 5-11 Theobalds Rd
London,WC1X 8SH
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[Image description: Infographic showing details of the "translating rare science into treatments" workshop. The image reads: A Findacure #RareWorkshop. A day-long translational research workshop helping patient groups and academics drive research forward to deliver the treatments that patients need. Taking place on Wednesday 19th November in London. A Findacure event in partnership with LifeArc.]

  How can patient groups help to transform rare science into treatments and successfully navigate the "translational valley of death".  Findacure, in collaboration with LifeArc, is delighted to announce its next workshop on translational research. The workshop will address a number of important issues designed to help patient groups and their academic and clinical collaborators understand how to turn laboratory science into effective treatments for rare disease patients. 10:00   Registration 10:30   Welcome 10:40   Translating translation         - Catriona…

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February 2019

Drug Repurposing for Rare Diseases Conference 2019

27th February, 2019 at 10:00 am - 5:00 pm
Royal College of Nursing, 20 Cavendish Square
London,W1G 0RN
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[Photograph of three men standing in a line facing the camera. The men are all smartly dressed in suits. They are each holding a sign which reads "I support Rare Disease Day Because...."]

  Findacure's Drug Repurposing for Rare Diseases Conference is returning for its sixth consecutive year! Developing drugs for rare diseases is challenging, both due to limited knowledge and small patient populations. Where treatments do exist, they often come with high price tags which healthcare providers struggle to pay for. Our annual conference discusses the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. Held in celebration of Rare Disease Day, our…

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