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Mary Rose Roberts

October 2018

The Glasgow Rare Disease Showcase

10th October at 10:00 am - 5:00 pm
[Image description: A photograph of two people stood up talking at a Findacure conference. Both people are smiling as though they are laughing with each other.]

  October will see the Findacure team crossing borders to celebrate rare disease projects in Scotland! Our Glasgow Rare Disease Showcase will unite the rare disease community and provide an opportunity for patient groups, researchers, clinicians, and the life sciences industry to come together as equals and share their rare disease stories. 09:30 - Registration 10:00 - Welcome 10:10 - Introduction to Findacure Dr Rick Thompson   CEO, Findacure 10:30 - Spinal muscular atrophy: progress and challenges in drug development for a…

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November 2018

Transforming rare science into treatments workshop

19th November at 10:30 am - 5:00 pm
RCPCH, Royal College of Paediatrics and Child Health, 5-11 Theobalds Rd
London, WC1X 8SH
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[Image description: Infographic showing details of the "translating rare science into treatments" workshop. The image reads: A Findacure #RareWorkshop. A day-long translational research workshop helping patient groups and academics drive research forward to deliver the treatments that patients need. Taking place on Wednesday 19th November in London. A Findacure event in partnership with LifeArc.]

  How can patient groups help to transform rare science into treatments and successfully navigate the "translational valley of death".  Findacure, in collaboration with LifeArc, is delighted to announce its next workshop on translational research. The workshop will address a number of important issues designed to help patient groups and their academic and clinical collaborators understand how to turn laboratory science into effective treatments for rare disease patients. Attendees can expect to hear talks on: What is translational research, and what…

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