The everyday impact of rare diseases: supporting your patient community The impact of rare diseases go far beyond the physical – they have a significant mental and social impact too. But, in the quest to find treatments and address medical issues, these other...
Transforming rare science into treatments Our third workshop of 2018 took place on Monday 19th November, in collaboration with LifeArc, and introduced patient groups to translational research. Translational research can sometimes sound like a bit of a buzzword,...
The Glasgow Rare Disease Showcase On Wednesday 10th October, Findacure embarked on its biggest adventure yet – The Glasgow Rare Disease Showcase! As our first venture into Scotland, this was an entirely new experience for the team, and more than ever before, we...
The Cambridge Rare Disease Showcase 2018 Cambridge is one of the UK’s leading cities for scientific and medical research, with a cluster of patient and advocacy groups, clinicians, life science networks and academics focused on rare diseases. It also happens to be the...
Fundraising for rare disease patient groups Our second workshop of 2018 took place on Friday 29th June and helped patient groups to improve their fundraising. Being able to raise funds is critical for any rare disease patient group. While many begin as volunteer-led...
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