Developing online communications

Developing online communications

Developing your online communications workshop Our first workshop of 2018 took place on Wednesday 28th March and focused on how patient groups can develop their online communications. Good online communications are very important when it comes to rare disease patient...
Drug Repurposing for Rare Diseases 2018

Drug Repurposing for Rare Diseases 2018

Drug Repurposing for Rare Diseases 2018 Findacure’s fifth annual conference was held on the 27th February 2018 at the Royal College of Nursing, London. Despite a snow storm causing serious travel disruption around the UK we still saw over a 100 delegates through the...
The Newcastle Rare Disease Showcase 2017

The Newcastle Rare Disease Showcase 2017

The Newcastle Rare Disease Showcase 2017 Newcastle is known for many things – brown ale; the Geordie accent and love of conversation; Ant and Dec; some of the world’s most passionate football supporters; and being voted the best city in the UK in 2014. Importantly,...
Accessing medicines for rare diseases

Accessing medicines for rare diseases

Accessing medicines for rare diseases workshop Our last workshop of 2017 helped patients groups better understand the regulatory processes around medicine access. Treatments for rare diseases are few and far between, and when they do exist, patients –...
Working with industry

Working with industry

Working with industry workshop Our third workshop of 2017 focused on the ways patient groups can collaborate with industry for better outcomes for patients. One of our core beliefs at Findacure is that success within the rare disease community is reliant upon the...