Making data work for you: the basics of data collection and handling for patient groups In the second week of July, we hosted a three-day online workshop that focused on data use, collection and storage. The aim of the workshop was to provide guidance and practical...
Representing your community: Engaging with ethnic minority communities In January 2021, we hosted a three-day online workshop in collaboration with Breaking Down Barriers that focused on how patient groups can improve their engagement with ethnic minority groups to...
23rd March, 2021 – 25th March, 2021 Towards the end of March, we hosted a three-day online workshop which focused on mental health and wellbeing within the rare disease community. The goal of the workshop was to provide patient organisations with an in-depth...
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