Accessing medicines for rare diseases

Accessing medicines for rare diseases

Accessing medicines for rare diseases workshop Our last workshop of 2017 helped patients groups better understand the regulatory processes around medicine access. Treatments for rare diseases are few and far between, and when they do exist, patients –...
Working with industry

Working with industry

Working with industry workshop Our third workshop of 2017 focused on the ways patient groups can collaborate with industry for better outcomes for patients. One of our core beliefs at Findacure is that success within the rare disease community is reliant upon the...
A-Z to setting up a patient group

A-Z to setting up a patient group

A-Z to setting up a patient group workshop Our second workshop of 2017 introduced patient groups to some of the key governance and administrative aspects of setting up a charity. Patient groups play a vital role in the rare diseases community – providing...
Introduction to community fundraising

Introduction to community fundraising

Introduction to community fundraising workshop Our first workshop of 2017 introduced patient groups to community fundraising. To explore how rare disease patient groups can engage their community for fundraising, we organised a workshop on Friday 28th April. More than...