Setting yourself up for fundraising success

                Setting yourself up for fundraising success Funding is of course central to running rare disease charities and being able to execute projects and provide the best support possible to rare disease communities. Many rare disease organisations depend on...
Leading a rare patient group

Leading a rare patient group

Leading a rare patient group   Our latest workshop on the 22nd January focused on the topic of leadership within a rare patient group. We all know that leadership is a skill we should be very aware of and try to be good at but sometimes it’s hard to know how to...