Successful collaborations: engaging the people that matter

Successful collaborations: engaging the people that matter

Back in September, we hosted a three-day online workshop that focused on how patient groups can successfully collaborate with stakeholders from across the rare disease spectrum. The goal of the workshop was to help patient groups collaborate with industry, pharma and other rare disease patient groups so that the rare community can advocate for change as one, united force. See what you missed!

Setting yourself up for fundraising success

Setting yourself up for fundraising success

                Setting yourself up for fundraising success Funding is of course central to running rare disease charities and being able to execute projects and provide the best support possible to rare disease communities. Many rare disease organisations depend on...
Leading a rare patient group

Leading a rare patient group

Leading a rare patient group   Our latest workshop on the 22nd January focused on the topic of leadership within a rare patient group. We all know that leadership is a skill we should be very aware of and try to be good at but sometimes it’s hard to know how to...