Leading a rare patient group

Leading a rare patient group

Leading a rare patient group   Our latest workshop on the 22nd January focused on the topic of leadership within a rare patient group. We all know that leadership is a skill we should be very aware of and try to be good at but sometimes it’s hard to know how to...
Diving into drug repurposing

Diving into drug repurposing

Diving into drug repurposing Findacure, and particularly Rick, has been talking about drug repurposing for a number of years hoping to convince the rare disease world, whether industry, researchers, or patient groups, that it is great way to develop rare disease...
Building a rare disease patient registry

Building a rare disease patient registry

Building a rare disease patient registry On 17th September, Findacure ran a workshop in London entitled ‘Building a rare disease patient registry’. The event was comprised of talks about registries from a range of stakeholders across the rare disease...
Transforming rare science into treatments

Transforming rare science into treatments

Transforming rare science into treatments Our third workshop of 2018 took place on Monday 19th November, in collaboration with LifeArc, and introduced patient groups to translational research. Translational research can sometimes sound like a bit of a buzzword,...