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Programme

Programme

We pride ourselves on producing a diverse programme that delivers something for everyone, and ensures our audience has every opportunity to consider rare disease developments from different perspectives. 

With talks from industry, academia, patient groups, and of course, rare disease patients themselves, The International Rare Disease Showcase welcomes everyone with a place in the rare disease community.

Alongside talks, attendees will have opportunities to engage directly with speakers and fellow delegates through a series of panel discussions, roundtables, and networking sessions, forming connections with advocates from across the rare disease community.

We hope you will join the conversation!

What’s in store?

With such small populations in each condition, effective change for rare disease patients has to be coordinated across borders. Patient groups, researchers and industry are increasingly looking to work internationally to deliver change.

Our showcase will highlight projects from around the world; in particular focusing on:  

Rare disease policy

How can rare disease take centre stage on the global level? How does RD policy differ across countries, and what can be implemented at an international level?

Patient group advocacy

What does rare advocacy look like around the world? How do rare disease patients connect on a global level? How can patients drive a global rare disease movement? 

Collecting data and RWE

How can we facilitate international data sharing and data collection to drive rare disease knowledge? How is real world evidence driving rare research around the world?

New technologies

How can technology facilitate rare research in hard to reach populations and locations? What new innovations are driving research and treatment for the rarest patients?

Access, approval and reimbursement

How does access to rare disease medicines differ between state funded and private health systems? What are the common challenges for access and value assessment?

Cross-boarder collaborations

How can rare disease organisations from different countries support one another? What makes an international collaboration successful, and what common challenges need to be addressed for success?

Research and drug development

How do you drive rare disease research outside of the major pharmaceutical markets? What are the challenges and requirements to deliver international clinical trials?

Plus, a celebration!

Our showcase will include the annual awards ceremony for The Student Voice Prize,  and a presentation from the 2021 essay competition winner. 

Keep an eye out for speaker announcements coming soon! 

Interested in speaking?

Submit a lightning talk

What is a lightning talk? A lightning talk is a micro-presentation that lasts only five minutes. We have been running lightning talk sessions at our events for over six years, with each session giving our delegates the chance to share their own rare stories with the rare disease community.

A good lightning talk condenses a couple of ideas to their essence, inspiring the audience to go searching for more information. Look no further than our ‘Lightning talk challenge‘ playlist for some great examples of previous talks.

How can you apply for a lightning talk?

To submit a lightning talk proposal, you must be registered to attend our showcase. During the registration process, you’ll be invited to indicate your interest in speaking and provide a short summary of your talk. Calls for lightning talks will remain open until Friday 7th January. 

Please note, submitting a lightning talk proposal does not guarantee you a speaking opportunity. We will review all proposals after the closing deadline and be in touch with successful applicants no later than Wednesday 12th January. 

Want to speak on our mainstage? Interested in hosting a breakout room of panel discussion? We have many speaking opportunities included within our sponsorship packages.

Get in touch today to discuss your options; contact [email protected]

With thanks to our sponsors

Corporate partner 2021

Gold Sponsor

Our sponsors and supporters have provided financial support for this event. This event has been organised by Findacure and neither our sponsors nor supporters have determined the content or organisation. All funds received by pharmaceutical companies have been used in accordance with the ABPI code.

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