by Rick Thompson | Rare disease world
[row][two-third] Rare disease patient groups play a huge role in building a community of people affected by a disease, and helping to share information about research, fundraising, services, clinical care, and symptom management. One of the best ways to help these...
by Guest | Rare disease world
This week’s blog has been written by our guest Alan Thomas from the patient group Atacsia a Fi – Ataxia and Me. In this post, Alan shares his journey to setting up his own patient support group in Wales for the rare disease Ataxia. Ataxia –...
by Rick Thompson | Findacure events
On Rare Disease Day, 29th February, Findacure hosted our third annual scientific conference, focussing on drug repurposing for rare diseases. The question on your lips may well be, why? Well, to answer that, we should first clarify what a conference even is. The font...
