by Mary Rose Roberts | Findacure events
[row][two-third] This week, our Head of Research Rick, talks about Findacure and Birmingham Children’s Hospital’s collaborative event, The Midlands Rare Disease Showcase. This week Findacure did something unusual, and slightly daring – no, not departing...
by Rick Thompson | Rare disease world
At Findacure, we love to speak to patients, and spend a lot of time thinking about the unique needs and challenges of being diagnosed with a rare disease. Despite this, we rarely get to be part of a patient’s interactions with the NHS. Earlier this month I got this...