by Mary Rose Roberts | Meet the team, Rare disease world
This week’s blog continues our “Meet the team” blog series, introducing our fundraisers to the Findacure community. Meet Stuart Brien, our 2017 London Marathon runner! In April, Stuart will be taking on the 26.2 mile London Marathon challenge. We...
by Guest Contributer | Rare disease world
[row][two-third] This is the first part Jessica Grace’s ‘Medicine beyond the textbook’ blog series. The blog posts, released every two months, share Jessica’s stories and thoughts as both a medical student and rare disease patient. “You’re young. It’s just a cold. You...
by Guest Contributer | Findacure projects
Volunteering for a small charity like Findacure can make a big difference to our overall productivity. We are currently searching for volunteers to help us with a range of activities, including marketing, design, communications, fundraising, project organisation,...
by Libbie Read | Fundraising events
[row][two-third] It was a dense, foggy morning when the Findacure team rolled up to the infamous Silverstone circuit. Shivering as they gathered their belongings from the car, they dwelled on the ordeal about to face them: 13 miles, or 21 kilometres, of running on a...
by Guest Contributer | Findacure projects, Rare disease world
Mark Jacunski, a medical student from King’s College London, is one of our three essay competition winners. His writing explores the medical and ethical issues involved in treating rare diseases with off-label prescriptions. In 1999, Jesse Gelsinger became the...