by Guest | Rare disease world
This week’s blog has been written by our guest Alan Thomas from the patient group Atacsia a Fi – Ataxia and Me. In this post, Alan shares his journey to setting up his own patient support group in Wales for the rare disease Ataxia. Ataxia –...
by Guest | Findacure projects
This week’s blog has been written by our guest Sue Routledge from the patient group Pitt Hopkins Syndrome UK. Sue was one of the first participants in our 2015-16 peer mentoring programme, and in this post she shares her mentoring story. I was thrilled when I...
