This week’s blog has been written by our Head of Research, Rick Thompson, reflecting on Rare Disease Day 2017 and our fourth annual conference. Tuesday, 28th February 2017 was the 10th annual Rare Disease Day – I hope it didn’t escape your notice. Every year it...
2015 was a fantastic year for Findacure. While continuing to achieve high standards in our existing projects, such as our patient training workshops, we also launched our peer-mentoring scheme, Cross Your Own Oceans project, and online portal. We hired another member...
When you are trying to find new treatments for rare diseases it is crucial that you have the right friends, with the right knowledge. With so much to learn about rare diseases, their treatment, and the patient experience, no one person can easily have all the...
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