Patient Support Group – In the beginning

In this week’s blog, David Bennett – a member of our Empowerment Advisory Committee – explores the early stages involved in setting up a patient group for a rare disease. His blog includes interviews with parents who have set up groups for rare...

Calling all cures!

[row][two-third] Everyone knows that Findacure really believes in drug repurposing. Finding new uses for existing pharmaceuticals has the potential to speed up and reduce the cost of delivering treatments to the rare disease patients that need them most. Luckily we...

How to write an effective press release

Samiksha Pattanaik, journalist and Findacure’s digital communications intern, shares her knowledge to help you and your patient group write great press releases. Whether you’re hosting a fundraising event, launching a new campaign, organising training workshops,...

The Patient Group Handbook

[row][two-third] We are delighted to announce that The Patient Group Handbook, edited by our founders, has been published! The book consists of 25 practical chapters about research and drug development in the rare diseases field, including: How to set up and manage a...