A patient centric road trip

[row][two-third] Rare disease patient groups play a huge role in building a community of people affected by a disease, and helping to share information about research, fundraising, services, clinical care, and symptom management. One of the best ways to help these...

Raising Funds From The Crowd

It can be incredibly difficult to fundraise for rare diseases, especially from traditional sources of funding like trusts and foundations. Rare diseases often get overlooked for more common conditions, where the impact of funding is seen as more significant. This is...