Meet our empowerment advisory committee!

The keen Findacure blog readers among you will have seen a blog late last year introducing Deborah, a member of our brand new Empowerment Advisory Committee. We are proud to have established this Committee late last year in an effort to bring more of the rare disease...

Patient Organisation Forum – July 2016

In recent years, a lot of attention has been placed on the need to bring the pharmaceutical industry together with patient organisations, to ensure the patient voice is present in treatment development. As part of this trend, the Association of the British...

What does Rare Disease Day mean to me?

[row][two-third] Our last blog in the build up to Rare Disease Day has been written by Maria Piggin, founder of PNH Support. Paroxysmal Nocturnal Haemoglobinuria (PNH) is a rare blood disorder where the bone marrow produces blood cells without their usual protein...