Rare Disease Week

Rare Disease Week

It has been an exciting and slightly frantic week for the Findacure team, and for everyone in the rare disease world. The build up to Rare Disease Day has been high paced, with events and announcements galore, all with the aim of raising more awareness of rare disease...

Drug Repurposing for Rare Diseases 2017

This week’s blog has been written by our Head of Research, Rick Thompson, reflecting on Rare Disease Day 2017 and our fourth annual conference. Tuesday, 28th February 2017 was the 10th annual Rare Disease Day – I hope it didn’t escape your notice. Every year it...

What does Rare Disease Day mean to me?

[row][two-third] Our last blog in the build up to Rare Disease Day has been written by Maria Piggin, founder of PNH Support. Paroxysmal Nocturnal Haemoglobinuria (PNH) is a rare blood disorder where the bone marrow produces blood cells without their usual protein...