by Rick Thompson
The winners of the 2019 Student Voice Prize have now been published in celebration of Rare Disease Day 2020. You can find links to all of the pieces here.
by Guest | Rare disease world
It is with a mix of sadness and gratitude that we announce the departure of our Executive Director, Flóra Raffai, from the Findacure team. Flóra started working as Project Manager in 2013, at which point she was the only Findacure team member. In late-2015, she took...
by Guest | Rare disease world
‘The challenges of being a ‘good’ patient’ is the fifth part of Jessica Grace’s ‘Medicine beyond the textbook’ blog series. The blog posts, released every two months, share Jessica’s stories and thoughts as both a medical student and rare disease patient....
by Guest | Rare disease world
This week’s blog, by Margarita Delgado Thompson, has been chosen from the essays submitted to our 2016 Student Voice Essay Competition. It makes a very interesting read. Rare syndromes are leading research for chronic health conditions that impact millions of...
