A patient centric road trip

[row][two-third] Rare disease patient groups play a huge role in building a community of people affected by a disease, and helping to share information about research, fundraising, services, clinical care, and symptom management. One of the best ways to help these...

Proving our social impact bond concept

[row] [one-third] [/one-third][two-third] As fans of all good crime dramas will know, proof is a hard thing to establish. Over the last year, the Findacure team has found itself in the position of having to build its own body of evidence – not to catch a criminal –...

The financial cost of rare diseases

A crucial part of our social impact bond (SIB) project is developing an understanding of the costs of rare diseases. Because the SIB is based on saving money for the NHS, our cost of illness modelling estimates the current financial cost of specific rare diseases in...