Findacure is a UK charity, and we are increasingly working to bring our events to people all around the United Kingdom. Our networking events, which we have now named showcases, are ideal for this. They act as a great place for patient groups to meet one another, as...
[row][two-third] This week, our Head of Research Rick, talks about Findacure and Birmingham Children’s Hospital’s collaborative event, The Midlands Rare Disease Showcase. This week Findacure did something unusual, and slightly daring – no, not departing...
This week’s blog has been written by our guest Alan Thomas from the patient group Atacsia a Fi – Ataxia and Me. In this post, Alan shares his journey to setting up his own patient support group in Wales for the rare disease Ataxia. Ataxia –...
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