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Hamilton House

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Mabledon Place
London,WC1H 9AZ

January 2019

The everyday impact of rare diseases: supporting your patient community

17th January, 2019 at 10:00 am - 4:00 pm
Hamilton House, Mabledon Place
London,WC1H 9AZ
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Findacure is delighted to announce its first training workshop of 2019, which will focus on how patient groups can help support their patient communities through the everyday impact of living with a rare condition. Attendees can expect to hear case studies from patient organisations on their various support initiatives, and take part in group work sessions aimed to help patient groups better understand and meet the needs of their distinctive communities. Anyone with an interest in rare diseases is welcome…

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