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July 2019

Growing your rare disease patient group: Identifying patients and groups online

11th July at 10:00 am - 10:45 am
[Image description: A photograph of two people hugging at a Findacure workshop. They are hugging like they are good friends who haven’t seen each other in a while.]

Calling all rare disease patient groups! Are you hoping to grow your group’s patient community? Tune into our webinar to find out how you can identify and reach out to patients online. There are two main ways of growing your patient group’s community online: building an online presence (e.g. through a website and social media) to make it easier for patients and families to find you; and actively identifying and reaching out to patients. This webinar will cover the second…

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